Press releases
30 April 2012 - Screening for Down syndrome - A community response
Midwives and GPs are attending a series of national workshops on screening for Down syndrome. This is our community response that is being sent to them and handed out at the venues.
12 December 2011 - PRESS RELEASE: Savingdowns condemns Richard Boock’s attack against the Down syndrome community
30 June 2011 - PRESS RELEASE: Down syndrome parents take Ministry of Health to the International Criminal Court - as reported on TV3
A group of parents of children with Down syndrome have lodged a complaint with the International Criminal Court against the Governments screening programme for Down syndrome.
Group spokesman Mike Sullivan said the group has applied to the Office of the Prosecutor under the provisions of Article 15.1 of the Rome Statute of the International Criminal Court. The Court has confirmed that the application is being considered.
The Prosecutor has been asked to investigate and intervene in the Ministry of Health's antenatal screening programme, as it persecutes against people with Down syndrome through the prevention of their births.
Evidence was presented to the Court's Prosecutors showing the screening programme prevents around 75% of births of people with Down syndrome in New Zealand.
The programme is promoted and funded by the government at a cost of $9.4M per year, or around $75,000 per unborn child diagnosed with Down syndrome.
The complaint names the Minister of Health as responsible for the programme under his statutory role. Article 27 of the Rome Statute provides that a role as a government official shall in no case exempt a person from criminal responsibility.
Mr Sullivan explained the complaint presents evidence obtained under the Official Information Act.
This includes details the previous Labour Minister of Health had foresight that the consequences of the screening programme would be the prevention of births of people with Down syndrome via selective abortion, leading to a significant reduction in their numbers.
"The current Minister of Health is continuing with the programme in the knowledge that the vast majority of pregnancies with Down syndrome will be aborted and has consistently refused to address any of our concerns,'' Mr Sullivan said.
The group who lodged the complaint is comprised of 37 concerned parents, siblings and supporting organisations, including a number of doctors.
The groups position statement is genetic screening must not be used to prevent the birth of unborn children with Down syndrome, as this is discrimination.
The group recognises genetic testing may help some parents prepare for the birth of a child with Down syndrome, in which case it should only be only directed towards safeguarding or healing the unborn child.
23 June 2011 - PRESS RELEASE: Down syndrome parents to take screening complaint to the International Criminal Court.
Following TV3's 60 Minutes documentary on June 12 “Down but not out'', parents of children with Down syndrome announced they will lodge a complaint with the International Criminal Court against the Governments screening programme for Down syndrome.
The basis of the parents' complaint is that the Government's antenatal screening programme specifically targets foetuses with Down syndrome and other rare genetic conditions, through the prevention of their births.
The 60 Minutes documentary was introduced with the statement “people with Down syndrome may soon disappear from the face of the earth.'' 60 Minutes revealed the new screening programme was introduced without public consultation and the Ministry of Health “did not bother'' asking the opinion of anyone who has Down syndrome, about the programme.
Mike Sullivan, father of three-year-old Rebecca Sullivan who has Down syndrome, featured in the 60 Minutes documentary. He said people with Down syndrome and other disabilities are human beings who live full and rewarding lives. “They must be treated on an equal basis with other members of our society, without any form of discrimination.''
De-Anne Jensen, mother of three with her oldest son having Down syndrome also featured on 60 Minutes. “Government documents say it costs less not to have children with Down syndrome around, so it looks like they are working to do away with Down syndrome. It's cheaper; you don't have to pay for the special needs things. The Government and medical experts are putting a monetary value on our baby's lives,'' Mrs Jensen said.
The parents' complaint references Government Cabinet papers obtained under the Official Information Act stating the outcomes of the programme will be a reduction in the number of births of people with Down syndrome, with around 90% of unborn children diagnosed with the condition being terminated. The persecution of an identifiable group of the civilian population through the prevention of births is specifically prohibited under the Rome Statute of the International Criminal Court, to which New Zealand is signatory.
The group is supported by parents with other disabilities that are being similarly targeted and other organisations who support their concerns.
The groups position statement is that genetic screening must not be used to prevent the birth of unborn children with Down syndrome, or cause harm to any unborn child.
The group recognises genetic testing may help some parents prepare for the birth of a child with Down syndrome. Any testing must respect the life and integrity of the unborn child, cause no harm, be only directed towards safeguarding or healing the unborn child and be presented in a way that does not discriminate against people with Down syndrome or any disability. Any testing must be developed in full engagement with those with Down syndrome.